Meet the Team
Kristin Spaeth
President
My son, Aiden is 6 years old and has Hunter Syndrome. I am also the mother of Karissa, Christian who is deaf and has a cochlear implant, Chance and Madison. My children are my life and passion through this experience we have all learned that everyday is a gift from God. For the past couple years I have been tirelessly fighting to help find a cure for Hunter Syndrome. Everyday I am faced with overcoming the many obstacles of insurance, educational needs and medical care. Through these experiences I have become an advocate for those that struggle with these same issues. I am dedicated to bring awareness to this rare genetic disease. My hope is to be a part of the process of finding a cure for Hunter Syndrome.
Jason Turpin
Treasurer
I am a full-time firefighter and husband. I learned about Hunter Syndrome when Aiden was diagnosed in 2008. From the day I learned about Hunter Syndrome and what Aiden and his family would have to go through as they dealt with his new diagnoses, I knew I had to help my friends and Aiden. The more I learned about Hunter syndrome and the more people I met and talked with who are dealing with this genetic disorder, the larger my drive became to make a difference. My goals are to provide all the support I can to the families affected by Hunter Syndrome, raise awareness about this condition and to help fund research for a cure.
Lisa Young
Secretary
My name is Lisa Young. I have been married to my husband, Tracy, since September of 1995. Today we reside in Tipp City, Ohio and together we have two girls, Ashley 12 years old and Allison 8 years old. I have had the pleasure of being a close friend to a family whose son was diagnosed with Hunter Syndrome in October of 2008. After seeing their tribulations and emotional struggles dealing with this terrible disease, it inspired me and my family to become engaged in the effort to extinguish Hunter Syndrome.
Robb Muller
Guardian
My son Riley has Hunter Syndrome (MPS II). I am a 35 year old husband and proud father of 2 boys, Donovan (9) and Riley (6). Since Riley was diagnosed with the Hunter Syndrome, I have made it my mission to bring as much awareness to the disease as possible. Riley is an inspiration and a symbol of courage that I use to guide me through my life.